The Rare360 Editorial Team
Addressing AI Algorithmic Bias in Healthcare: A Focus on Rare Disease Patients
Artificial intelligence is transforming healthcare, but rare disease patients are facing new challenges due to algorithmic bias.
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The Rare360 Editorial Team
- 23 hours ago
- 4 min
The Feeding Tube Community: Living with Strength, Solidarity, and Resilience
Explore how the feeding tube community is breaking barriers, raising awareness, and living life to the fullest.
The Rare360 Editorial Team
- 2 days ago
- 10 min
Medical Gaslighting and Rare Diseases: A Call for Awareness and Change
Learn about the impact of gaslighting on rare disease patients and strategies to navigate the healthcare system.
The Rare360 Editorial Team
- 3 days ago
- 3 min
FDA Approves First-Ever Epinephrine Nasal Spray (Neffy) for Treating Life-Threatening Allergic Reactions
Neffy, the FDA-approved epinephrine nasal spray, offering a groundbreaking alternative to injections for managing severe allergic reactions.
The Rare360 Editorial Team
- 3 days ago
- 4 min
Vision Services Disparity: How Medicaid’s State-Level Policies Affect the US Rare Disease Community
Learn why expanding Medicaid vision coverage is crucial for the rare disease community and what policy reforms could help.
The Rare360 Editorial Team
- 6 days ago
- 13 min
Battling Batten Disease: A Fight Against the Rare and Relentless
Discover the complexities of Batten disease, a rare neurodegenerative disorder affecting children.
The Rare360 Editorial Team
- 7 days ago
- 3 min
Digital Health in Rare Diseases: How Wearables are Transforming PNH Care
Learn how wearable technology, like Fitbits, is helping patients with PNH track their overall well-being.
The Rare360 Editorial Team
- 7 days ago
- 12 min
Ransomware and Rare Diseases: The Unseen Impact on Chronic Illness Patients
Explore the hidden dangers of ransomware attacks on healthcare, focusing on their impact on rare disease patients.
The Rare360 Editorial Team
- Jun 6
- 4 min
Transforming Rare Disease Research: Insights into Clinical Trial Challenges
Discover the challenges faced by biopharmaceutical companies in rare diseases clinical trials.
The Rare360 Editorial Team
- May 9
- 7 min
From Isolation to Empowerment: How Performing Arts Can Transform the Lives of Those with Rare Diseases
Discover how performing arts can uplift individuals with rare diseases, addressing mental health challenges and fostering empowerment.
The Rare360 Editorial Team
- May 7
- 7 min
Thought Leadership in Mental Health For Rare Diseases
A discussion with Mental Health for Rare Thought Leader JC Muyl.
The Rare360 Editorial Team
- May 6
- 4 min
Rare Diseases, Mental Health Issues, and What We Can Do About It
For the rare disease community, mental health is not just a topic to discuss during the month of May. Mental health must remain a priority.
The Rare360 Editorial Team
- Mar 21
- 6 min
Beyond the Skin and Muscles: Understanding Dermatomyositis
Explore the complexities of living with dermatomyositis, a rare autoimmune disorder affecting both muscles and skin.
The Rare360 Editorial Team
- Feb 19
- 2 min
FDA Extends Priority Review Period for Kresladi/ RP-L 201 in Treating Severe Leukocyte Adhesion Deficiency-I (LAD-1)
Explore the FDA's extension of the priority review period for Kresladi, a groundbreaking gene therapy for severe LAD-1
The Rare360 Editorial Team
- Feb 16
- 7 min
From Struggle to Seeking Solutions: The Reality of Rare Disease Diagnostic Methods
From genetic testing to AI, explore the evolving landscape shaping the future of rare disease diagnosis.
The Rare360 Editorial Team
- Feb 2
- 6 min
Navigating the Complexity of Danon Disease
Unveil the complexities of Danon Disease –a rare multisystem disorder. From genetics to management, explore the latest insights in this blog
The Rare360 Editorial Team
- Jan 29
- 8 min
Beyond the Bloodstream: Understanding Pyruvate Kinase Deficiency (PKD)
Discover the genetic intricacies of Pyruvate Kinase Deficiency, its diverse symptoms, diagnostic challenges, & cutting-edge treatment option
The Rare360 Editorial Team
- Jan 25
- 6 min
Facing Leukocyte Adhesion Deficiency (LAD): Types, Symptoms, and Progress in Diagnosis and Treatment
Delve into Leukocyte Adhesion Deficiency (LAD): genetic causes, symptoms, and treatment strategies.
The Rare360 Editorial Team
- Jan 23
- 4 min
A Discussion with Michael Kornhauser - A Rare Disease Ally in Clinical Research
Discussing the impact of clinical studies on patients’ lives and Michael’s perspective as a clinical trials operations specialist.
The Rare360 Editorial Team
- Jan 18
- 3 min
Milestone in Gene Therapy: Casgevy Approved for Transfusion-Dependent Beta Thalassemia
Explore the FDA's groundbreaking approval of CASGEVYâ„¢ the treatment of transfusion-dependent beta-thalassemia (TDT).
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