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The Rare360 Editorial Team
2 hours ago5 min read
Repairing Trust and Supporting Community-based Advocacy: A Conversation with Rare360's Executive Director
Explore how Rare360 empowers the rare disease community through advocacy and trust-building.
The Rare360 Editorial Team
1 day ago3 min read
The Genetic Puzzle Solved: Why Some People Stay Symptom-Free Despite Disease Genes
Why do some people inherit disease-causing genes but show no symptoms?
The Rare360 Editorial Team
2 days ago3 min read
Breakthrough Discovery Uncovers a New Genetic Link to Autism Spectrum Disorder
A groundbreaking study has linked the DDX53 gene, located on the X chromosome, to autism spectrum disorder (ASD).
The Rare360 Editorial Team
Jan 33 min read
Study Unveils Pervasive Ableism in U.S. Mental Healthcare Settings
Ableism and systemic barriers in mental healthcare continue to challenge U.S. adults with disabilities.
The Rare360 Editorial Team
Jan 112 min read
Winter Wellness Guide: Herbal Remedies to Support Rare Disease Patients During the Colder Months
Discover natural herbal remedies to boost immunity and manage symptoms during winter for rare disease patients.
The Rare360 Editorial Team
Dec 30, 20249 min read
Breaking Down the Complexities of IC-MPGN: Symptoms, Diagnosis, and Management
Discover everything you need to know about Immune Complex-Mediated Membranoproliferative Glomerulonephritis (IC-MPGN).
The Rare360 Editorial Team
Dec 18, 20245 min read
Championing Change: Brittany Galante on Bridging Gaps in Rare Disease Healthcare
From personal experience to professional impact, Brittany Galante is transforming rare disease diagnostics for the hEDS community and beyond
The Rare360 Editorial Team
Dec 17, 20247 min read
Understanding Fragile X Syndrome: Insights into the Most Common Inherited Cause of Intellectual Disabilities
Discover the complexities of Fragile X Syndrome, the most common inherited cause of intellectual disabilities.
The Rare360 Editorial Team
Dec 10, 20246 min read
Breaking Barriers: Addressing Economic Inequities Faced by Black and Brown Women with Disabilities
Systemic barriers rooted in race, gender, and disability result in significant economic and social inequities for disabled women of color.
The Rare360 Editorial Team
Dec 4, 20244 min read
Your Insights Matter: The Role of Market Research in Rare Disease
Market research studies play a transformative role in rare disease care by gathering insights directly from patients and caregivers.
The Rare360 Editorial Team
Dec 3, 20245 min read
Genetic Data for Sale? The Ethical Dilemma of 23andMe’s Financial Struggles
Once a trailblazer in genetic testing, 23andMe now faces financial uncertainty, sparking concerns about the future of its genetic database.
The Rare360 Editorial Team
Nov 15, 20249 min read
Battling Fatigue? Discover Why Dry Eyes Could Be the Unseen Culprit
Feeling tired all the time? Discover the surprising connection between dry eyes and fatigue.
The Rare360 Editorial Team
Nov 11, 20248 min read
Navigating Love: Dating & Healthy Relationships for People with Disabilities
Here’s a guide to help cultivate fulfilling relationships that embrace each person’s unique experiences, including those with a disability.
The Rare360 Editorial Team
Nov 8, 202410 min read
Understanding Complement 3 Glomerulopathy (C3G): Unmasking the Complexities of a Rare Kidney Disease
Explore Complement 3 Glomerulopathy (C3G), a rare kidney disease that disrupts immune function and affects kidney health.
The Rare360 Editorial Team
Nov 1, 20246 min read
Bridging Technology and Empathy: How Compassionate AI is Transforming Rare Disease Healthcare
Compassionate AI is set to transform rare disease healthcare by combining the power of artificial intelligence with emotional intelligence.
The Rare360 Editorial Team
Oct 30, 202410 min read
How Telehealth is Redefining Palliative Care for the Rare Disease Population
In the realm of healthcare, early access to palliative care can significantly enhance the quality of life for patients with rare diseases.
The Rare360 Editorial Team
Oct 29, 20245 min read
A Major Milestone for Disability Rights: DOT’s Historic Fine on American Airlines
The U.S. DOT recent $50 million fine against American Airlines marks a pivotal moment in the fight for disability rights in air travel.
The Rare360 Editorial Team
Oct 28, 20249 min read
Valerian Root: Ancient Sleep Aid, Modern Solutions
Learn how Valerian root, an ancient herbal remedy, may help rare disease patients tackle sleep disorders and improve their quality of life.
The Rare360 Editorial Team
Oct 25, 20246 min read
The Overlooked Crisis: How Rare Eye Disease Patients Are Left in the Dark
Millions of adults on Medicaid lack essential coverage for routine eye care, creating a silent crisis for those with rare diseases.
The Rare360 Editorial Team
Oct 23, 20247 min read
Recognizing the Unseen: The Hidden Battles of Invisible Disabilities
This article delves into invisible disabilities, highlighting their complexities and the need for greater understanding and empathy.
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