Rare disease communities understand fragility — not only biological fragility, but system fragility. For families navigating rare and medically complex conditions, crisis is rarely theoretical. It can be clinical, behavioral, logistical, and financial. It can surface at 2 a.m. in an emergency room unequipped for complexity. It can appear when a caregiver reaches burnout. It can emerge when fragmented systems fail to communicate across silos. While crisis infrastructure is oft