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Rare Disease Families Are on the Frontlines of Climate Change
This article explores how climate change is deepening the crisis for rare disease patients worldwide, and why the path forward must include policies and protections tailored to this uniquely at-risk population.
The Rare360 Editorial Team
Aug 2912 min read
Rare Disease Day: A Call to Action for a More Inclusive Healthcare System
Join us this Rare Disease Day to advocate for an inclusive healthcare system.
The Rare360 Editorial Team
Feb 284 min read
Respecting Boundaries: Why it's important for the Pharmaceutical Industry and Its Service Providers to Ethically Engage with Online Rare Disease Communities
Pharma companies must respect the privacy of rare disease communities on social media.
The Rare360 Editorial Team
Jan 234 min read
Repairing Trust and Supporting Community-based Advocacy: A Conversation with Rare360's Executive Director
Explore how Rare360 empowers the rare disease community through advocacy and trust-building.
The Rare360 Editorial Team
Jan 225 min read
Championing Change: Brittany Jež on Bridging Gaps in Rare Disease Healthcare
From personal experience to professional impact, Brittany Jež is transforming rare disease diagnostics for the hEDS community and beyond
The Rare360 Editorial Team
Dec 18, 20245 min read
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