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News Briefs
24 hours ago3 min read
The Genetic Puzzle Solved: Why Some People Stay Symptom-Free Despite Disease Genes
Why do some people inherit disease-causing genes but show no symptoms?
2 days ago3 min read
Breakthrough Discovery Uncovers a New Genetic Link to Autism Spectrum Disorder
A groundbreaking study has linked the DDX53 gene, located on the X chromosome, to autism spectrum disorder (ASD).
Jan 33 min read
Study Unveils Pervasive Ableism in U.S. Mental Healthcare Settings
Ableism and systemic barriers in mental healthcare continue to challenge U.S. adults with disabilities.
Living Rare Editorials
Jan 112 min read
Winter Wellness Guide: Herbal Remedies to Support Rare Disease Patients During the Colder Months
Discover natural herbal remedies to boost immunity and manage symptoms during winter for rare disease patients.
Dec 10, 20246 min read
Breaking Barriers: Addressing Economic Inequities Faced by Black and Brown Women with Disabilities
Systemic barriers rooted in race, gender, and disability result in significant economic and social inequities for disabled women of color.
Dec 4, 20244 min read
Your Insights Matter: The Role of Market Research in Rare Disease
Market research studies play a transformative role in rare disease care by gathering insights directly from patients and caregivers.
Patient Advocacy & Community Activism
Dec 30, 20249 min read
Breaking Down the Complexities of IC-MPGN: Symptoms, Diagnosis, and Management
Discover everything you need to know about Immune Complex-Mediated Membranoproliferative Glomerulonephritis (IC-MPGN).
Dec 17, 20247 min read
Understanding Fragile X Syndrome: Insights into the Most Common Inherited Cause of Intellectual Disabilities
Discover the complexities of Fragile X Syndrome, the most common inherited cause of intellectual disabilities.
Nov 15, 20249 min read
Battling Fatigue? Discover Why Dry Eyes Could Be the Unseen Culprit
Feeling tired all the time? Discover the surprising connection between dry eyes and fatigue.
Thought Leaders
1 hour ago5 min read
Repairing Trust and Supporting Community-based Advocacy: A Conversation with Rare360's Executive Director
Explore how Rare360 empowers the rare disease community through advocacy and trust-building.
Dec 18, 20245 min read
Championing Change: Brittany Galante on Bridging Gaps in Rare Disease Healthcare
From personal experience to professional impact, Brittany Galante is transforming rare disease diagnostics for the hEDS community and beyond
May 7, 20247 min read
Thought Leadership in Mental Health For Rare Diseases
A discussion with Mental Health for Rare Thought Leader JC Muyl.
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