top of page
From Isolation to Empowerment: How Performing Arts Can Transform the Lives of Those with Rare Diseases
Discover how performing arts can uplift individuals with rare diseases, addressing mental health challenges and fostering empowerment.
The Rare360 Editorial Team
May 9, 20247 min read
Thought Leadership in Mental Health For Rare Diseases
A discussion with Mental Health for Rare Thought Leader JC Muyl.
The Rare360 Editorial Team
May 7, 20247 min read
Rare Diseases, Mental Health Issues, and What We Can Do About It
For the rare disease community, mental health is not just a topic to discuss during the month of May. Mental health must remain a priority.
The Rare360 Editorial Team
May 6, 20244 min read
Beyond the Skin and Muscles: Understanding Dermatomyositis
Explore the complexities of living with dermatomyositis, a rare autoimmune disorder affecting both muscles and skin.
The Rare360 Editorial Team
Mar 21, 20246 min read
FDA Extends Priority Review Period for Kresladi/ RP-L 201 in Treating Severe Leukocyte Adhesion Deficiency-I (LAD-1)
Explore the FDA's extension of the priority review period for Kresladi, a groundbreaking gene therapy for severe LAD-1
The Rare360 Editorial Team
Feb 19, 20242 min read
From Struggle to Seeking Solutions: The Reality of Rare Disease Diagnostic Methods
From genetic testing to AI, explore the evolving landscape shaping the future of rare disease diagnosis.
The Rare360 Editorial Team
Feb 16, 20247 min read
Navigating the Complexity of Danon Disease
Unveil the complexities of Danon Disease –a rare multisystem disorder. From genetics to management, explore the latest insights in this blog
The Rare360 Editorial Team
Feb 2, 20246 min read
Beyond the Bloodstream: Understanding Pyruvate Kinase Deficiency (PKD)
Discover the genetic intricacies of Pyruvate Kinase Deficiency, its diverse symptoms, diagnostic challenges, & cutting-edge treatment option
The Rare360 Editorial Team
Jan 29, 20248 min read
Facing Leukocyte Adhesion Deficiency (LAD): Types, Symptoms, and Progress in Diagnosis and Treatment
Delve into Leukocyte Adhesion Deficiency (LAD): genetic causes, symptoms, and treatment strategies.
The Rare360 Editorial Team
Jan 25, 20246 min read
A Discussion with Michael Kornhauser - A Rare Disease Ally in Clinical Research
Discussing the impact of clinical studies on patients’ lives and Michael’s perspective as a clinical trials operations specialist.
The Rare360 Editorial Team
Jan 23, 20244 min read
Milestone in Gene Therapy: Casgevy Approved for Transfusion-Dependent Beta Thalassemia
Explore the FDA's groundbreaking approval of CASGEVY™ the treatment of transfusion-dependent beta-thalassemia (TDT).
The Rare360 Editorial Team
Jan 18, 20243 min read
Aplastic Anemia: Unravelling the Mystery of Bone Marrow Failure
Explore Aplastic Anemia's complexities—autoimmune links, diverse causes, evolving treatments.
The Rare360 Editorial Team
Jan 16, 20247 min read
Into the Depths of Multiple Sclerosis: An Exploration from Symptoms to Treatment Options
Embark on a comprehensive exploration of Multiple Sclerosis (MS) - from recognizing symptoms to innovative treatments.
The Rare360 Editorial Team
Jan 11, 202413 min read
Understanding Ehlers-Danlos Syndrome (EDS)
Understand the importance of awareness, timely diagnosis, and collaborative healthcare in supporting individuals with EDS.
The Rare360 Editorial Team
Dec 29, 20237 min read
New Horizon in PNH Treatment: FDA Approves First Oral Drug
Explore the latest in PNH treatment with the FDA's groundbreaking approval of iptacopan (Fabhalta).
The Rare360 Editorial Team
Dec 12, 20233 min read
Achondroplasia: Insights into Genetics, Diagnosis, and Treatment Options
Uncover the genetics, symptoms, and advancements in treating Achondroplasia, a rare bone growth disorder.
The Rare360 Editorial Team
Nov 10, 20234 min read
Understanding Hemophilia: Symptoms, Diagnosis, and Treatment Options
Explore the genetic origins and blood clotting factors underlying hemophilia, a rare bleeding disorder.
The Rare360 Editorial Team
Nov 8, 20239 min read
New Hope for Pediatric Patients: Bosutinib's Approval in Treating Chronic Phase Ph+ CML
Learn about Ph+ CML, its phases, and the FDA's approval of bosutinib for pediatric patients with chronic myeloid leukemia.
The Rare360 Editorial Team
Nov 6, 20233 min read
10 Top Picks on Amazon to Help Ease Insomnia: Sleep Aid Technology and Gadgets for 2023
We decided to explore the internet and the rare disease community-based landscape to identify the top ten sleep aids and gadgets for 2023.
The Rare360 Editorial Team
Nov 3, 20239 min read
Assessing Safety and Effectiveness of Damoctocog Alfa Pegol in Hemophilia A Patients
HEM-POWR study shows damoctocog alfa pegol's promise, reducing bleeding and improving joint health in hemophilia A patients.
The Rare360 Editorial Team
Nov 1, 20233 min read
Allan-Herndon-Dudley Syndrome (AHDS): Unraveling Genetics, Symptoms, Diagnosis, and Treatment Option
This blog post summarizes the complexities of AHDS, the diagnostic process, and current treatment approaches.
The Rare360 Editorial Team
Oct 30, 20237 min read
Unveiling Pompe Disease: A Rare Genetic Disorder with Profound Impact
Delve into the intricacies of Pompe Disease, an uncommon genetic anomaly causing muscle and heart complications.
The Rare360 Editorial Team
Oct 27, 20239 min read
Cracking the PNH Code: Exploring its History and Breakthrough Treatments
Delve into PNH's genetic enigma, historical journey, & rare blood disorder insights, including prevalence, symptoms, diagnosis, & treatment.
The Rare360 Editorial Team
Oct 26, 20238 min read
Unravelling IgG4-Related Disease: From Diagnosis to Treatment
Unravel the mysteries behind IgG4-RD that affects multiple organs, shedding light on prevalence, symptoms, diagnosis, and treatment options.
The Rare360 Editorial Team
Oct 4, 20237 min read
© Copyright 2023 - 2025. Rare Love Ventures. All Rights Reserved in partnership through Rare360. Powered by RAM.
bottom of page