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Understanding Sickle Cell Disease: A Deep Dive into Diagnosis, Symptoms, and Modern Therapies
This blog article explores the causes, symptoms, complications, diagnosis, and treatment options for sickle cell disease.
The Rare360 Editorial Team
Oct 8, 202411 min read
From CRISPR to Jumping Genes: The Next Breakthrough in Genetic Science
New research on "jumping genes" could lead to safer, more precise gene-editing techniques.
The Rare360 Editorial Team
Oct 3, 20244 min read
Genetic Blueprints in Mental Health: How Pharmacogenomic Testing is Changing the Game
Pharmacogenomic (PGx) testing is revolutionizing how doctors prescribe mental health medications, especially for rare disease patients.
The Rare360 Editorial Team
Oct 2, 20246 min read
Medicare Prescription Payment Plan Explained: Lowering Costs for High-Priced Medications
The new Medicare Prescription Payment Plan will help reduce out-of-pocket drug costs and make medications more affordable.
The Rare360 Editorial Team
Sep 24, 20244 min read
Retinitis Pigmentosa: A Guide to Symptoms and Management
Retinitis Pigmentosa (RP) is a group of rare, inherited eye disorders leading to progressive vision loss.
The Rare360 Editorial Team
Sep 23, 20249 min read
Myelofibrosis: Diagnosing and Managing a Complex Rare Blood Cancer
Discover the complexities of myelofibrosis! Explore its causes, symptoms, and cutting-edge treatments in our latest article.
The Rare360 Editorial Team
Sep 18, 20249 min read
Cystic Fibrosis (CF): Prevalence, Symptoms, Diagnosis, and Multifaceted Treatment Modalities for Effective Management
This article explores the root causes of Cystic Fibrosis, the challenges it poses, and the importance of early diagnosis and treatment.
The Rare360 Editorial Team
Sep 16, 202413 min read
The Rise of Medical Students with Disabilities: A Promising Trend for Rare Disease and Chronic Illness Communities
The rise of medical students with disabilities is a promising shift, bringing hope for more inclusive care fo rare disease community.
The Rare360 Editorial Team
Sep 13, 20243 min read
Addressing AI Algorithmic Bias in Healthcare: A Focus on Rare Disease Patients
Artificial intelligence is transforming healthcare, but rare disease patients are facing new challenges due to algorithmic bias.
The Rare360 Editorial Team
Sep 11, 20245 min read
The Feeding Tube Community: Living with Strength, Solidarity, and Resilience
Explore how the feeding tube community is breaking barriers, raising awareness, and living life to the fullest.
The Rare360 Editorial Team
Sep 11, 20244 min read
Medical Gaslighting and Rare Diseases: A Call for Awareness and Change
Learn about the impact of gaslighting on rare disease patients and strategies to navigate the healthcare system.
The Rare360 Editorial Team
Sep 10, 202410 min read
FDA Approves First-Ever Epinephrine Nasal Spray (Neffy) for Treating Life-Threatening Allergic Reactions
Neffy, the FDA-approved epinephrine nasal spray, offering a groundbreaking alternative to injections for managing severe allergic reactions.
The Rare360 Editorial Team
Sep 9, 20243 min read
Vision Services Disparity: How Medicaid’s State-Level Policies Affect the US Rare Disease Community
Learn why expanding Medicaid vision coverage is crucial for the rare disease community and what policy reforms could help.
The Rare360 Editorial Team
Sep 9, 20244 min read
Battling Batten Disease: A Fight Against the Rare and Relentless
Discover the complexities of Batten disease, a rare neurodegenerative disorder affecting children.
The Rare360 Editorial Team
Sep 6, 202413 min read
Digital Health in Rare Diseases: How Wearables are Transforming PNH Care
Learn how wearable technology, like Fitbits, is helping patients with PNH track their overall well-being.
The Rare360 Editorial Team
Sep 5, 20243 min read
Ransomware and Rare Diseases: The Unseen Impact on Chronic Illness Patients
Explore the hidden dangers of ransomware attacks on healthcare, focusing on their impact on rare disease patients.
The Rare360 Editorial Team
Sep 5, 202412 min read
Transforming Rare Disease Research: Insights into Clinical Trial Challenges
Discover the challenges faced by biopharmaceutical companies in rare diseases clinical trials.
The Rare360 Editorial Team
Jun 6, 20244 min read
From Isolation to Empowerment: How Performing Arts Can Transform the Lives of Those with Rare Diseases
Discover how performing arts can uplift individuals with rare diseases, addressing mental health challenges and fostering empowerment.
The Rare360 Editorial Team
May 9, 20247 min read
Thought Leadership in Mental Health For Rare Diseases
A discussion with Mental Health for Rare Thought Leader JC Muyl.
The Rare360 Editorial Team
May 7, 20247 min read
Rare Diseases, Mental Health Issues, and What We Can Do About It
For the rare disease community, mental health is not just a topic to discuss during the month of May. Mental health must remain a priority.
The Rare360 Editorial Team
May 6, 20244 min read
Beyond the Skin and Muscles: Understanding Dermatomyositis
Explore the complexities of living with dermatomyositis, a rare autoimmune disorder affecting both muscles and skin.
The Rare360 Editorial Team
Mar 21, 20246 min read
FDA Extends Priority Review Period for Kresladi/ RP-L 201 in Treating Severe Leukocyte Adhesion Deficiency-I (LAD-1)
Explore the FDA's extension of the priority review period for Kresladi, a groundbreaking gene therapy for severe LAD-1
The Rare360 Editorial Team
Feb 19, 20242 min read
From Struggle to Seeking Solutions: The Reality of Rare Disease Diagnostic Methods
From genetic testing to AI, explore the evolving landscape shaping the future of rare disease diagnosis.
The Rare360 Editorial Team
Feb 16, 20247 min read
Navigating the Complexity of Danon Disease
Unveil the complexities of Danon Disease –a rare multisystem disorder. From genetics to management, explore the latest insights in this blog
The Rare360 Editorial Team
Feb 2, 20246 min read
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