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Rare Disease Day: A Call to Action for a More Inclusive Healthcare System
Join us this Rare Disease Day to advocate for an inclusive healthcare system.
The Rare360 Editorial Team
Feb 28, 20254 min read
Silencing Connections: The Impact of Social Media Bans on Rare Disease Communities
The TikTok ban in the US has far-reaching consequences, especially for the rare disease community.
The Rare360 Editorial Team
Feb 26, 20255 min read
Love Beyond Romance: Guide to Embracing Self-Care and Connection on Valentine’s Day
For many, Valentine’s Day is all about romantic gestures—but for those with rare diseases, it’s a powerful reminder to celebrate self-love f
The Rare360 Editorial Team
Feb 14, 20255 min read
FDA's Diversity Guidance Withdrawal Sparks Concerns Over Clinical Trial Inclusivity
In a controversial move, the FDA has quietly removed its draft guidance on clinical trial diversity, sparking concerns over inclusivity.
The Rare360 Editorial Team
Feb 10, 20253 min read
Navigating Hypercortisolism: A Guide to Understanding Cushing’s Syndrome
Cushing’s Syndrome is a rare but serious endocrine disorder caused by prolonged exposure to high levels of cortisol.
The Rare360 Editorial Team
Feb 7, 20254 min read
When Low Blood Sugar Strikes: A Deep Dive into Idiopathic Ketotic Hypoglycemia
Idiopathic Ketotic Hypoglycemia (IKH) is a rare metabolic disorder often overlooked in children.
The Rare360 Editorial Team
Feb 5, 20259 min read
Redefining Market Research with Empathy and Inclusion: Insights from Heather Flaherty
Heather F., co-founder of Level 5 Insights, is redefining healthcare market research with a mission rooted in empathy, inclusion, & advocacy
The Rare360 Editorial Team
Jan 27, 20255 min read
Respecting Boundaries: Why it's important for the Pharmaceutical Industry and Its Service Providers to Ethically Engage with Online Rare Disease Communities
Pharma companies must respect the privacy of rare disease communities on social media.
The Rare360 Editorial Team
Jan 23, 20254 min read
Repairing Trust and Supporting Community-based Advocacy: A Conversation with Rare360's Executive Director
Explore how Rare360 empowers the rare disease community through advocacy and trust-building.
The Rare360 Editorial Team
Jan 22, 20255 min read
The Genetic Puzzle Solved: Why Some People Stay Symptom-Free Despite Disease Genes
Why do some people inherit disease-causing genes but show no symptoms?
The Rare360 Editorial Team
Jan 21, 20253 min read
Breakthrough Discovery Uncovers a New Genetic Link to Autism Spectrum Disorder
A groundbreaking study has linked the DDX53 gene, located on the X chromosome, to autism spectrum disorder (ASD).
The Rare360 Editorial Team
Jan 20, 20253 min read
Study Unveils Pervasive Ableism in U.S. Mental Healthcare Settings
Ableism and systemic barriers in mental healthcare continue to challenge U.S. adults with disabilities.
The Rare360 Editorial Team
Jan 3, 20253 min read
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