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Battling Batten Disease: A Fight Against the Rare and Relentless
Discover the complexities of Batten disease, a rare neurodegenerative disorder affecting children.
The Rare360 Editorial Team
Sep 6, 202413 min read
Digital Health in Rare Diseases: How Wearables are Transforming PNH Care
Learn how wearable technology, like Fitbits, is helping patients with PNH track their overall well-being.
The Rare360 Editorial Team
Sep 5, 20243 min read
Ransomware and Rare Diseases: The Unseen Impact on Chronic Illness Patients
Explore the hidden dangers of ransomware attacks on healthcare, focusing on their impact on rare disease patients.
The Rare360 Editorial Team
Sep 5, 202412 min read
Transforming Rare Disease Research: Insights into Clinical Trial Challenges
Discover the challenges faced by biopharmaceutical companies in rare diseases clinical trials.
The Rare360 Editorial Team
Jun 6, 20244 min read
From Isolation to Empowerment: How Performing Arts Can Transform the Lives of Those with Rare Diseases
Discover how performing arts can uplift individuals with rare diseases, addressing mental health challenges and fostering empowerment.
The Rare360 Editorial Team
May 9, 20247 min read
Thought Leadership in Mental Health For Rare Diseases
A discussion with Mental Health for Rare Thought Leader JC Muyl.
The Rare360 Editorial Team
May 7, 20247 min read
Rare Diseases, Mental Health Issues, and What We Can Do About It
For the rare disease community, mental health is not just a topic to discuss during the month of May. Mental health must remain a priority.
The Rare360 Editorial Team
May 6, 20244 min read
Beyond the Skin and Muscles: Understanding Dermatomyositis
Explore the complexities of living with dermatomyositis, a rare autoimmune disorder affecting both muscles and skin.
The Rare360 Editorial Team
Mar 21, 20246 min read
FDA Extends Priority Review Period for Kresladi/ RP-L 201 in Treating Severe Leukocyte Adhesion Deficiency-I (LAD-1)
Explore the FDA's extension of the priority review period for Kresladi, a groundbreaking gene therapy for severe LAD-1
The Rare360 Editorial Team
Feb 19, 20242 min read
From Struggle to Seeking Solutions: The Reality of Rare Disease Diagnostic Methods
From genetic testing to AI, explore the evolving landscape shaping the future of rare disease diagnosis.
The Rare360 Editorial Team
Feb 16, 20247 min read
Navigating the Complexity of Danon Disease
Unveil the complexities of Danon Disease –a rare multisystem disorder. From genetics to management, explore the latest insights in this blog
The Rare360 Editorial Team
Feb 2, 20246 min read
Beyond the Bloodstream: Understanding Pyruvate Kinase Deficiency (PKD)
Discover the genetic intricacies of Pyruvate Kinase Deficiency, its diverse symptoms, diagnostic challenges, & cutting-edge treatment option
The Rare360 Editorial Team
Jan 29, 20248 min read
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