Insurance denials create devastating barriers for rare disease patients, delaying essential treatments and driving up costs. This article explores systemic flaws in coverage policies, the appeal process, and new reforms aiming to improve equity and access to rare disease care.

This article explores how climate change is deepening the crisis for rare disease patients worldwide, and why the path forward must include policies and protections tailored to this uniquely at-risk population.

From personal experience to professional impact, Brittany Jež is transforming rare disease diagnostics for the hEDS community and beyond

The rise of medical students with disabilities is a promising shift, bringing hope for more inclusive care fo rare disease community.

Learn about the impact of gaslighting on rare disease patients and strategies to navigate the healthcare system.